Patients & Caregivers

Patients are our North Star

AviadoBio is developing treatments for frontotemporal dementia (FTD) and amyotrophic lateral sclerosis (ALS), both are devastating neurodegenerative diseases for patients, families and caregivers. With our deep understanding of the brain and our suite of proprietary gene therapy platforms and delivery technologies, we are working relentlessly to overcome the challenges of delivering the right medicine to the right place. Our hope is that our gene therapy treatments will potentially halt or potentially even reverse neurodegenerative diseases.

AviadoBio policy on expanded access to investigational therapies

Frontotemporal dementia with progranulin mutations research (FTD-GRN)

Caregiver Stories from the FTD Journey

Hear directly from family members of people affected by frontotemporal dementia (FTD) and learn more about their experiences from receiving a diagnosis through the progression of their loved one’s dementia.

Jacquelyn: A daughter’s FTD story

Jacquelyn’s mother’s FTD symptoms began as early as 2013, starting with insomnia, memory loss, and differences in her usual behavior. Hear from Jacquelyn as she recounts her mother’s FTD journey and how their family is navigating this devastating disease together.

Tanya: A wife’s FTD story

Tanya’s husband was a beloved partner, father, and high school history teacher, who ultimately passed away five years after his FTD diagnosis. Learn more about his FTD diagnosis, Tanya’s role as his caregiver, and her mission to raise awareness of FTD.

“It’s heartbreaking to see how fast neurodegenerative diseases, such as ALS and FTD, change the lives of patients, families and caregivers. At AviadoBio, we listen intently to this community and know their input into our work is invaluable. We extend this same compassionate approach to those we work with so everyone can collaborate by sharing their ideas and offering creative solutions.”

Farah Speer

SVP, Communications and External Relations

Farah Speer

SVP, Communications and External Relations


Frontotemporal dementia (FTD) is a devastating form of early-onset dementia and is characterized by a rapid decline in executive function, behavior and/or language, and typically leads to death within seven to 13 years of symptom onset and three to 10 years from diagnosis.

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Amyotrophic lateral sclerosis (ALS), also known as motor neuron disease or Lou Gehrig’s disease is a devastating multisystem neurodegenerative disease, ALS is primarily characterized by degeneration of both upper and lower motor neurons.

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Learn more about our mission to transform lives and our industry-leading team


Find out more about how we are progressing innovative gene therapies to potentially treat neurodegenerative disease. 


When you join AviadoBio, you join more than just a company, you join a dedicated team with a clear mission



We’d love to hear from you. If you have an enquiry about our gene therapies, delivery systems or clinical trials please contact us using the details here